The Food and Drug Administration (FDA) has approved a transformational treatment for one of the most tragic of pediatric skin diseases. The first-of-its kind topical gene therapy for Epidermolysis ...

New mechanistic research and clinician-reported real-world experience adds to the evolving evidence base for birch triterpenes in EB ---- Chiesi proudly marks EB Awareness Week ...

A revolutionary treatment brings new hope to those suffering from a devastating rare skin disorder, while showcasing an innovative funding model that could transform rare disease research In a ...

PARMA, Italy and WOODBRIDGE, Ontario, June 09, 2026 (GLOBE NEWSWIRE) -- Chiesi Global Rare Diseases, a business unit of Chiesi Group established to deliver innovative therapies and solutions for ...

BOSTON, Dec. 19, 2023 (GLOBE NEWSWIRE) -- Chiesi Global Rare Diseases, a business unit of the Chiesi Group established to deliver innovative therapies and solutions for people affected by rare ...

"Recessive Dystrophic Epidermolysis Bullosa (RDEB) is the worst disease you've probably never heard of," says dermatology researcher Andrew South, Ph.D.. RDEB patients and their families know just how ...

The rare inherited disorder epidermolysis bullosa, or EB, leads to skin so fragile that it tears like tissue paper. The resulting wounds and blisters are slow to heal and prone to infection. On ...

BOSTON--(BUSINESS WIRE)--BPGbio, Inc., a leading biology-first, AI-powered, clinical stage biopharma focused on mitochondrial biology and protein homeostasis, today announced that the U.S. Food and ...

He’s biking for the rare disease epidermolysis bullosa, or EB. He is the great uncle to two young boys who have the rare disease. “It’s just my mission, spreading his goodness and his message of hope, ...

The "Plunge for Elodie" raises awareness and funds for critical research to treat and cure Epidermolysis Bullosa (EB) Born with Recessive Dystrophic Epidermolysis Bullosa (EB), 6-year-old Elodie Kubik ...