HEALEY ALS Platform Trial
HEALEY ALS Platform Trial
Sep 25, 2019
massgeneral.org
Last month we shared an article outlining the results of the first-in-human study of jacifusen, which showed a halt in FUS-ALS disease progression. This month, we’re breaking down the science so that everyone can understand just how exciting this development is and its implications on the broader ALS community. Thank you to those who made this possible: Project ALS researchers, especially Dr. Neil Shneider, co-director of the Project ALS Therapeutics Core at Columbia; Ionis; Charles River; and,
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Last month we shared an article outlining the results of the first-in-human study of jacifusen, which showed a halt in FUS-ALS disease progression. This month, we’re breaking down the science so that everyone can understand just how exciting this development is and its implications on the broader ALS community. Thank you to those who made this possible: Project ALS researchers, especially Dr. Neil Shneider, co-director of the Project ALS Therapeutics Core at Columbia; Ionis; Charles River; and,
916 viewsMar 10, 2022
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Lauren Hendel, Brynley Kirchhoff, and Kylan Morris talked to us about growing up with a parent living with ALS, the isolation of grief, the power of action, and why Project ALS continues to give them hope. Their ferocity and heart is evident in every second of the conversation. We couldn’t be prouder of their commitment to Project ALS and their dedication to finding treatments and a cure for ALS. Watch the full Project ALS Research LIVE here: http://bit.ly/3GaRhGI | Project ALS
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Lauren Hendel, Brynley Kirchhoff, and Kylan Morris talked to us about growing up with a parent living with ALS, the isolation of grief, the power of action, and why Project ALS continues to give them hope. Their ferocity and heart is evident in every second of the conversation. We couldn’t be prouder of their commitment to Project ALS and their dedication to finding treatments and a cure for ALS. Watch the full Project ALS Research LIVE here: http://bit.ly/3GaRhGI | Project ALS
191 viewsDec 22, 2022
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Jenifer Estess was a 35-year-old New York theater and film producer who was diagnosed—out of nowhere--with ALS. Her doctors told her to max out her credit cards and eat junk food—because they had no medicine to give her for ALS, a fatal brain disease. Jenifer made another choice. With her sisters, family and friends, she founded the non-profit Project ALS. Jenifer’s vision was to unite competing scientists to work together toward the first effective treatments. Project ALS built the world’s firs
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Jenifer Estess was a 35-year-old New York theater and film producer who was diagnosed—out of nowhere--with ALS. Her doctors told her to max out her credit cards and eat junk food—because they had no medicine to give her for ALS, a fatal brain disease. Jenifer made another choice. With her sisters, family and friends, she founded the non-profit Project ALS. Jenifer’s vision was to unite competing scientists to work together toward the first effective treatments. Project ALS built the world’s firs
2.1K viewsMay 10, 2019
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Join the Project ALS family and support critical research. Chris Combs, husband, father of 3, and former pitcher for the North Carolina State Wolfpack and Pittsburgh Pirates, was diagnosed with ALS in 2016. Watch his story and donate to Project ALS research now to bring us closer to a cure. | Project ALS
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Join the Project ALS family and support critical research. Chris Combs, husband, father of 3, and former pitcher for the North Carolina State Wolfpack and Pittsburgh Pirates, was diagnosed with ALS in 2016. Watch his story and donate to Project ALS research now to bring us closer to a cure. | Project ALS
11.2K viewsDec 7, 2018
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Three weeks ago, Project ALS had the honor of hosting Tables Turned on ALS: A Gourmet Evening in Madison, Wisconsin, featuring the incredible culinary talents of chefs Dan Jacobs, Dan Van Rite, and Dan Bonanno. This evening was made possible by the remarkable efforts of Leigh Vierstra. Leigh courageously shared her personal journey—having lost both her mother and sister to ALS, and facing her own early symptoms of the disease. Her kindness, resilience, and the love she radiated touched everyone
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Three weeks ago, Project ALS had the honor of hosting Tables Turned on ALS: A Gourmet Evening in Madison, Wisconsin, featuring the incredible culinary talents of chefs Dan Jacobs, Dan Van Rite, and Dan Bonanno. This evening was made possible by the remarkable efforts of Leigh Vierstra. Leigh courageously shared her personal journey—having lost both her mother and sister to ALS, and facing her own early symptoms of the disease. Her kindness, resilience, and the love she radiated touched everyone
770 viewsOct 15, 2024
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Leading neurologist and neuroscientist, Dr. Jeffrey Rothstein, diagnosed Project ALS founder Jenifer Estess at the age of 35. He then became a founding crusader for collaborative Project ALS research. Tonight Dr. Jeffrey Rothstein will be our special guest alongside Meredith Estess, Valerie Estess and Erin Fleming to have an intimate discussion about the beginning years of Project ALS, why it was created, and what we’re doing now. You won't want to miss out on this kickoff to Project ALS: 25 Yea
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Leading neurologist and neuroscientist, Dr. Jeffrey Rothstein, diagnosed Project ALS founder Jenifer Estess at the age of 35. He then became a founding crusader for collaborative Project ALS research. Tonight Dr. Jeffrey Rothstein will be our special guest alongside Meredith Estess, Valerie Estess and Erin Fleming to have an intimate discussion about the beginning years of Project ALS, why it was created, and what we’re doing now. You won't want to miss out on this kickoff to Project ALS: 25 Yea
311 viewsJan 26, 2023
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Sarah Langs was diagnosed with ALS at 28. In addition to giving us some of the best reporting in baseball, Sarah has raised awareness and funds for promising ALS research. A Langs Star is inspired by Sarah's bright spirit and 100% of profits will go towards Project ALS’ cutting-edge ALS research. | Project ALS
551 viewsJun 27, 2023
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Sarah Langs was diagnosed with ALS at 28. In addition to giving us some of the best reporting in baseball, Sarah has raised awareness and funds for promising ALS research. A Langs Star is inspired by Sarah's bright spirit and 100% of profits will go towards Project ALS’ cutting-edge ALS research. | Project ALS
1.5K viewsJun 27, 2023
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Teens can get ALS too. Help us find out why. Project ALS met with 7 mothers nationwide who lost their teenage daughters to ALS. Watch their stories. Support crucial ALS genetics research now so we can end this disease - forever. Give now: https://fundraise.projectals.org/give/211906/#!/donation/checkout | Project ALS
6.6K viewsDec 11, 2018
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"Honored to be taking part in the Don’t Talk-A-Thon benefiting Project ALS in memory of my dad, especially today which would’ve been his 62nd birthday." Join Hunter in the fight and create your fundraising page today: bit.ly/42i1GIU | Project ALS
20.3K viewsMay 2, 2023
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ALS Therapy Development Institute
Nov 26, 2015
als.net
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Just because ALS robs you of your speech, doesn't mean your voice can't be heard. Join those, like Desi and her daughter, for the Don't Talk-A-Thon and be a part of silencing ALS. Create your fundraising page here: https://bit.ly/3HRGotH | Project ALS
16.3K viewsMay 8, 2023
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Project ALS on Reels
130 views6 months ago
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Project ALS on Reels
72 views6 months ago
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They’re lending their voices. They’re shining a light on ALS. 💙 This Giving Tuesday, see how some of your favorite voices are showing up for people living with ALS—and then join them. Every gift fuels critical research and brings hope to families affected by this disease. Give boldly. Fuel research: https://bit.ly/4856p55 #givingtuesday #ALS #ALSresearch | Project ALS
17.3K views5 months ago
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Twenty years ago today, the movie Jenifer debuted. Creating the movie was a labor of love for Jenifer, Meredith, Valerie Estess, and so many others. Jenifer’s friends traveled from all over to make the movie happen… they knew how important it was that her story be told on behalf of all people living with ALS. This clip speaks to the heart of why the Estess sisters and their friends—their family—started Project ALS: to find a cure. “Not ways to make life more manageable, but a cure.” Please watch
1.8K viewsOct 21, 2021
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It is impossible to imagine that our sister Jenifer died 20 years ago today. Jenifer is the reason why Project ALS is commemorating 25 years of research progress. She continues to be the heart and drive behind everything we do. Project ALS has always been about the love of family and how success can be achieved when members of a community work together toward shared goals. To all the people living with ALS, scientists, parents, researchers, caregivers, lab techs, doctors and friends that are par
1.2K viewsDec 16, 2023
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This holiday season marks twenty years since Project ALS founder Jenifer Estess died from ALS. Those closest to her always—and will forever—believe that we can solve the ALS puzzle together. Simon Halls, Jenifer's dearest friend, and member of the Project ALS board of directors, asks for your partnership at year's end. Let's finish this. Give today: https://bit.ly/3FOKuRy | Project ALS
826 viewsDec 22, 2023
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The co-directors at the Project ALS Therapeutics Core Drs. Hynek Wichterle and Emily Rhodes Lowry (Columbia University) lead collaborative efforts to develop new tools for understanding ALS. Their most recent work on motor neuron rejuvenation has been published and our very own Valerie Estess is breaking it down for you. Donate toward motor neuron rejuvenation here: https://bit.ly/3FOKuRy Read the full paper here: https://bit.ly/3UpYuIX | Project ALS
619 viewsApr 23, 2024
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Meet Brooke Eby, a Her ALS Story member, current fighter against ALS, and a new friend of Project ALS. Brooke gives us a glimpse into what her everyday life looks like living with ALS, and her optimism and bright spirit shine through. Her strength drives Project ALS to work even harder to find treatments, and a cure, for ALS. Your support helps people living with ALS, like Brooke, get closer to an ALS-free future. | Project ALS
5.3K viewsSep 7, 2022
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Renowned ALS researcher Dr. Jeffrey Rothstein, MD, PhD, from Johns Hopkins, discusses Project ALS in the 2004 HBO documentary Three Sisters: Searching for a Cure. You can watch the full video here: https://bit.ly/4fjk9ef It will be the most important movie you'll watch this holiday season. ❤️ Learn about our current research programs and 2025 priorities: https://bit.ly/41dJTW1 | Project ALS
380 viewsDec 16, 2024
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When Project ALS co-founder Jenifer Estess was diagnosed with ALS at the age of 35, her doctor told her to max out her credit cards, eat junk food, and just… wait to die. Like most who find themselves in this situation, she was appalled. Jenifer was one of those women who excels at anything she sets her mind to; sitting around and waiting was not one of those things. What she chose to do instead, we continue to feel the reverberations of today, 23 years later. Jenifer became a champion--the cham
1.7K viewsMay 6, 2021
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A son continues his father’s legacy. Tommy Kirchhoff’s father, Tom, a football star, passed away from ALS in 2015. Tommy, a freshman at Penn State University, and his best friend Bobby Whalen, incredibly raised over $240k for ALS research through their football fundraiser, We Will W1n 4 ALS. Each wore #14 in honor of Tom. Watch Tommy’s story through his eyes and join him and all those who have been affected by ALS in the fight. Donate today: https://fundraise.projectals.org/give/211906/#!/donati
18.6K viewsDec 27, 2018
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Project ALS was first to use stem cells to create limitless motor neurons, the cells that die in ALS, a major breakthrough. Now, researchers are using these stem cell models to study the disease and screen for drugs, bringing us closer than ever to medicine for people who need it so desperately. Learn more about our research and donate now: https://www.projectals.org/our-research/ | Project ALS
1.6K viewsNov 13, 2018
FacebookProject ALS
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2020 has brought extraordinary challenges, but the Project ALS Family has met them. The Kleiner Family Initiative at Project ALS supports targeted efforts to develop new therapies. Watch the Kleiners work and, please, give as you can now. Visit http://fundraise.projectals.org/giving2020 today! | Project ALS
2.6K viewsNov 24, 2020
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Project ALS was founded by three sisters, Jenifer, Meredith, and Valerie Estess, when Jenifer was diagnosed with ALS at the age of 35. Donate to Project ALS this holiday season to bring us closer to a cure. https://fundraise.projectals.org/giving2020 | Project ALS
7K viewsDec 16, 2020
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Christine Taylor & Ben Stiller want you to join the Don't Talk-a-Thon on May 22nd to support crucial Project ALS research. Here's how: | Project ALS
327.8K viewsMay 5, 2016
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What Brooke Eby said 👀 Create your fundraising page or donate here: https://bit.ly/3MaWLmE | Project ALS
11.6K viewsMay 17, 2023
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On February 4th, please join special guest Ben Stiller to learn how Jaci and Alex Hermstad inspired the development of jacifusen - a novel gene therapy for ALS. https://bit.ly/3okWwbk | Project ALS
17.2K viewsJan 19, 2021
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